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October 24, 2017

Paul and Seizures

Of all the things Paul had to endure, I think seizures were the worst.  They were random and could occur at any time, so they affected everything we did and we had to think about them any time we planned…
October 19, 2017

Paul and the Neighbors

We lived in great neighborhood in Belleville. We moved there in 2000, and Paul was born in 2001. Right away the neighbors all pitched in and Paulie instantly had a bunch of parents and friends. Many of the kids, now…
October 16, 2017

Paul and walking

Paul led me to conclude that walking is overrated.  It was something that we were really concerned about when we got the initial diagnosis, at birth.  Our kid would be different, and it would be obvious because he wouldn’t be…
October 8, 2017

Paul and Me

One of the things that we have to do after losing a child is find a new definition of who we are. I was primarily Paul’s Dad, especially after Paige left for college. I need to find a new identity…
October 5, 2017

Paul Starting Out

I never wanted to be the Dad of the handicapped kid. No one really asks for that. Growing up, they were the kids in the separate room, at the end of the hall at school. I think that I was…
October 1, 2017

Paul Stood Out

Paul didn’t stand for the National Anthem. We went to a few sporting events each year, and that was an awkward 2 minutes for us. Kathie would get irritated when they said, “Please stand for the National Anthem”. She thought…
September 26, 2017

Paul and Help

Paul needed a lot of help sometimes, and I enjoyed helping him. I have nearly infinite patience for most things, especially for him, and I could usually discern what he really needed. Sometimes he would act like he needed more…
September 22, 2017

Paul Out Loud

Thank you to everyone who has reached out to me since I started writing these. I admit it has led to some awkward and emotional interactions. Awkwardness never really bothered me and I admit I kind of enjoy and appreciate…
September 18, 2017

Paul and Grieving

Most days we are functioning a little better now. Yesterday we had our first sled hockey event, just an equipment inventory, and it was way more emotional than a hockey event like that should be. Today Kathie went to her…